tag:blogger.com,1999:blog-810761027729657969.post2197782069818307759..comments2022-07-22T13:17:19.758-07:00Comments on Jenny's Journey: Jenny's family and friendshttp://www.blogger.com/profile/12642351790427113307noreply@blogger.comBlogger65125tag:blogger.com,1999:blog-810761027729657969.post-15583802257892994982008-11-12T14:08:00.000-08:002008-11-12T14:08:00.000-08:00I suggest you read this!http://www.topix.com/forum...I suggest you read this!<BR/>http://www.topix.com/forum/health/als/TLHIJ3IKBITLLVBTP#lastPostUnknownhttps://www.blogger.com/profile/10893026579089666411noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-18267193509951210382008-10-13T11:36:00.000-07:002008-10-13T11:36:00.000-07:00for class action lawsuite info contact our lawyer ...for class action lawsuite info contact our lawyer at erinbrockovich.com we lost our 17 year old,jessica ericzon in february from gardasiljessicasdadhttps://www.blogger.com/profile/14950459528041132781noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-76659670423475956602008-10-01T06:26:00.000-07:002008-10-01T06:26:00.000-07:00well, to me it seems quite logical that jenny had ...well, to me it seems quite logical that jenny had "something" before receiving Gardasil shots: Guillain -Barre Syndrome, MS in early stages, or even ALS of which early onset has been brought on by the Gardasil. Vaccine shots is known to have been triggering severe neurological symptoms- like a vaccine for rabies. Get tested for Chlamydia Pneumoniae, and also herpes viruses just in case!Unknownhttps://www.blogger.com/profile/10893026579089666411noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-91965208881304168552008-09-24T07:10:00.000-07:002008-09-24T07:10:00.000-07:00I have some suggestions for supplements: Alpha Lip...I have some suggestions for supplements: Alpha Lipoic Acid, Propolis, Elderberry extract,Bilberries, Cabbage (great detoxifier, also try cauliflower), Oregano, Gingko biloba, Vitamin D (higher doses than generally recommended), Vitamin C (high doses), Vitamin B12 (and also other B group vitamins and higher than recommended doses)Fish Oil (cod liver oil- high in essential fatty acids, which are anti-inflammatory, higher doses than generally recommended). <BR/>Get all the vitamins naturally, they seem to work best, when not synthetical. But i don´t know how easy that´ll be as I don´t know the extent of Jenny´s paralysis.<BR/><BR/>Few useful links:<BR/><BR/>http://www.liveandfeel.com/index.html<BR/><BR/>http://www.spiritofhealing.com/articles/html/multiple_sclerosis_and_als2.html<BR/><BR/>http://www.zhion.com/<BR/><BR/>http://www.sixwise.com/newsletters/05/07/27/the-15-healthiest-berries-you-could-possibly-eat--including-7-most-havent-heard-of.htm<BR/><BR/>http://www.bodybuildingforyou.com/health-supplements/alpha-lipoic-acid.htm<BR/><BR/>http://www.umm.edu/altmed/articles/bilberry-000225.htm<BR/><BR/>I hope this helps!<BR/>All the best to You all there!Unknownhttps://www.blogger.com/profile/10893026579089666411noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-75341654567801691622008-08-25T12:09:00.000-07:002008-08-25T12:09:00.000-07:00One more post from me.You are talking here about G...One more post from me.<BR/>You are talking here about Gardasil injection, which is a vaccine against papilloma virus which causes cancer. It might be that it has seriously affected your immune system, it seems to be very strong vaccine! Here you have a report of a girl dyeing after the injection. Whatever the cause, possibility of immune system or inflammation being involved in the mysterious disease is very big.Unknownhttps://www.blogger.com/profile/10893026579089666411noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-32994534527070328232008-08-25T11:57:00.000-07:002008-08-25T11:57:00.000-07:00I would also like to say that LDN is very cheap, a...I would also like to say that LDN is very cheap, and this might be the reason why it´s not advertised so much! It would halt the money circulation in medicine world as a potent cure for many diseases treated with expensive treatments.<BR/>All the best to You there!!Unknownhttps://www.blogger.com/profile/10893026579089666411noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-82161524377233299662008-08-25T11:47:00.000-07:002008-08-25T11:47:00.000-07:00Have you heard of the low dose naltrexone(or LDN)?...Have you heard of the low dose naltrexone(or LDN)? It seems to work on MS, Fibromyalgia, ALS, Chronic Fatigue Syndrome - which all are considered to be autoimmune diseases. Finnish woman Maija Haavisto has written a book about it , not only on LDN but other potent cures for autoimmune diseases. LDN also seems even to halt cancer and even kill cancer cells effectively. I would give it a try!!! google LDN and find out more about it! Jenny is a beautiful and lovely girl, I wish her all the best! <BR/>P.S. Get tested for Lyme Disease, not only once but for many times, it´s hard to track it down! also check: http://www.brokenmarionettebook.com/?mainUnknownhttps://www.blogger.com/profile/10893026579089666411noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-57581680287490208492008-08-15T18:48:00.000-07:002008-08-15T18:48:00.000-07:00I'm sorry that I don't know any comparables - some...I'm sorry that I don't know any comparables - some friends of mine have taken Gardasil, but they haven't experienced any adverse side effects. I haven't taken Gardasil yet (my mom is still deliberating), but now I'm not so sure.<BR/>I read about Gardasil online, and it has been linked to paralysis in Australia as well as the US. One site I read said that most of the side effects were in people with severe allergies.<BR/>At any rate, Jenny, you are in my thoughts and prayers, and my heart goes out to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-20103503201412660572008-08-07T08:57:00.000-07:002008-08-07T08:57:00.000-07:00we lost our 17 year old daughter on feb. 22nd,jess...we lost our 17 year old daughter on feb. 22nd,jessica ericzon,she had her third gardasil shot 40 hours before we found her dead on the bathroom floor,jessie was an honor student and star athlete,never had any health problems,she was a great person,liked by everyone,she had just gotten accepted at suny plattsburgh to major in psychology and become a new york state trooper,i miss her sooo much,our hearts are broken,love of life is lost,i pray someday we will know what killed her,the autopsy found nothing,we were told her heart just stopped,yet they found nothing wrong with it,i just can't accept that there is no cause,a perfectly healthy 17 year old just doesn't drop dead,damn the fda,the cdc, and merck for your money grubbing tacticstimhttps://www.blogger.com/profile/10225958964371842454noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-43122710432946167722008-07-17T07:38:00.000-07:002008-07-17T07:38:00.000-07:00Hi,I found the following reference re: adverse eve...Hi,<BR/><BR/>I found the following reference re: adverse events that occured in patients after having been given Gardasil:<BR/><BR/>"But more serious side effects including paralysis, Bells Palsy, Guillain-Barre Syndrome, seizures, and blood clots are not mentioned, and account for the remaining instances of negative reactions to the drug."<BR/><BR/>I do hope this is helpful. I'll keep you in my thoughts & prayers.<BR/><BR/>CindyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-21633250630462036672008-07-09T09:49:00.000-07:002008-07-09T09:49:00.000-07:00i'm so sorry about jennys condition..i am 17 years...i'm so sorry about jennys condition..<BR/><BR/>i am 17 years old and recieved the Gardasil shot about a year ago. Ever since i finished the series of shots, something hasn't felt right. I've had MRI's and been to neurologists to see what is causing my symptoms, panic attacks,migranes and blacking out. no one has linked my symptoms to the gardasil shots but i have a feeling it might have something to do with it..i know my case isn't nearly as servere as Jenny's but i just wanted to post my story. <BR/><BR/>Jenny is in my prayers.APophttps://www.blogger.com/profile/03241389428057835339noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-78202728468890111602008-07-09T08:09:00.000-07:002008-07-09T08:09:00.000-07:00Unfortunately there is nothing I know that can hel...Unfortunately there is nothing I know that can help you, but I did want to say I'm sorry, tell Jenny hello and hope for the best for all of you. I'll be thinking "fun thoughts" for you Jenny.Jenniferhttps://www.blogger.com/profile/10411021111564140391noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-21892616291744918992008-07-06T07:40:00.000-07:002008-07-06T07:40:00.000-07:00sorry to get to know you in a depressed state, to ...sorry to get to know you in a depressed state, to often this now happen due to environ toxin that we happen to live in/with tis toxic cocktail that we call home/earth is just getting worse,<BR/>have you ever been screen for aouto immune disorders also have you had a toxic screening done, these are the first steps to take also, the best to do is to seek out an homotoxicologist a dr, that specialize in toxic syndromes, the best one close to you is Dr, Mayfield in Phoenix Arizona,<BR/>I wopuld not be surprised if there is environ toxins lodge in nerv path and also vaccines are guided with the mercury as a preserveatory of the vaccine it self,<BR/>please seek help with your alternative path and the homotoxicologist close to you,<BR/>yours in healthacuprosweden08https://www.blogger.com/profile/03402160389407636820noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-17341612863313865322008-07-04T11:16:00.000-07:002008-07-04T11:16:00.000-07:00Jenny - I wish for you many happy days and years. ...Jenny - I wish for you many happy days and years. Your journey in life is an inspiration to anyone that reads your story. Blessings from Middle Georgia - Anne (Stitches by Anne)Annehttps://www.blogger.com/profile/11215852192699725151noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-91171950679498265672008-07-04T10:15:00.000-07:002008-07-04T10:15:00.000-07:00Dear Dr Tetlock,I am a neurologist specializing in...Dear Dr Tetlock,<BR/>I am a neurologist specializing in the care of patients with MS,an auto-immune disorder which targets the central nervous system myelin. CIDP targets the peripheral nervous system myelin. One of my long time patients, whose struggle with CIDP began 15 years ago, is now back to work, driving his car, walking short distances without assistive devices, relying on a scooter for energy conservation, thanks to Beta-Interferon-1a.I started him on this MS immunomodulator close to 5 years ago when it became apparent that the "classic" CIDP treatments (IVIG's, plasmapheresis, immunosuppressants, IV and oral steroids in various combinations)were losing their efficacy while causing worsening adverse effects. Once on weekly IM Beta-Interferon, my patient who had needed to be chronically on prednisone, was able to slowly taper the steroid down and discontinued it 3 years ago. As to the cause of his CIDP, if not brought on by vaccination (I am a staunch opponent of the indiscriminate vaccination recommendations currently in vogue and my patients know not to agree to any immunization unless cleared by me. My rule is to refuse any vaccine that has potential adverse effects worse than the disease the immunization targets),is nevertheless immune-mediated. He has an IgM kappa antibody-producing clone of "benign" (as opposed to cancerous) cells in his bone marrow.We were, after a long struggle, able to make the Veteran's Administration admit that the probable cause of my patient's condition, him being a Vietnam veteran, was exposure to Agent Orange.<BR/>Assuming that your daughter's correct diagnosis is CIDP, treatment with Beta-Interferon 1a<BR/>might be worth considering.<BR/>Assuming once more that the hallmark of your daughter's condition is myelin damage, she might benefit from treatment with 4-AP (AP stands for aminopyridine)which speeds up nerve conduction thereby "compensating" for the slowing in NCV caused by demyelination. If I can be of any further assistance do not hesitate to contact me via e-mail.<BR/>My heart goes to you as I have a daughter, now 21 years old, who in 1988 became one of the first victims of the epidemic of acquired autism. Just one other devastating neurological disorder which according to our government and medical establishment (my colleagues)does not really exist. They will be forced to listen to us, "hysterical" mothers and fathers when all these kids ,instead of joining the work force, have to apply for Social Security Supplemental Income (and Title XIX to have access to the limited programs available to young disabled adults).<BR/>If I can be of any further assistance to you and your beautiful daughter, do not hesitate to contact me via e-mail.<BR/>And yes, make sure that Lyme disease was effectively ruled out, by obtaining Lyme Serology by ELISA and WESTERN-BLOT analysis performed on blood and CSF(spinal fluid) and by obtaining a CSF Borrelia Bergdorferi PCR. Testing should be performed OFF antibiotics, steroids, immunosuppressants IVIG and plasmapheresis for at least one month to minimize the risk of false negative results.<BR/><BR/>Marie-Anne Denayer, M.D.<BR/>Connecticut.Marie-Anne Denayerhttps://www.blogger.com/profile/07947080246893789645noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-36305996391553262912008-07-03T19:19:00.000-07:002008-07-03T19:19:00.000-07:00Dr Tetlock,Please contact Dr. Jane El-Dahr at Tula...Dr Tetlock,<BR/>Please contact Dr. Jane El-Dahr at Tulane Medical Center. She an immunologist and one of the world's leading experts on assessing and treating vaccine damage. Best wishes.Trentonhttps://www.blogger.com/profile/00627338576376913807noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-37585549753762554492008-06-27T16:54:00.000-07:002008-06-27T16:54:00.000-07:00Hello,My name is Dr. Mark Flannery and I am a chir...Hello,<BR/><BR/>My name is Dr. Mark Flannery and I am a chiropractor in Southern California. It is heartbreaking to read your story. Let me say first that I am no expert in treating for vaccine reactions. I have recently though helped a 13 y/o girl who was suffering from severe abdominal pain of several months after receiving the Gardasil vaccine. I am more than willing to share with you the knoweledge I gained through her treatment. If you are interested in discussing her case, you can get my contact information at www.livehealthwise.com. As I said, I am no expert on the subject and abdominal pain is a far cry from the neurologic deficit of Jenny. I will keep you in my prayers. God bless.Dr. Markhttps://www.blogger.com/profile/09944196240848227560noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-8589041299727675142008-06-25T18:09:00.000-07:002008-06-25T18:09:00.000-07:00(I don't know if this got lost or not) I really d...(I don't know if this got lost or not)<BR/><BR/> I really do hope someone at Merck is losing sleep about this..<BR/><BR/> A hair-brained thought I had the other day was whether this could be similar to how the rabies virus attacks the body.. As you may know, there was a recent case of a girl in Wisconsin who was the first known human to recover from rabies (although a trial to replicate this treatment apparently didn't work). (A copy of the Scientific American article about this can be found at http://www.unb.br/ib/cel/pg/SEMI_6.pdf) The Wisconsin-Madison team that was responsible for the protocol worked off the theory that since the immune system can naturally kill of the virus, if you can protect the brain from it's ravenges, the body will recover - they induced coma, applied neuroprotective agensts, and let the immune system kill the virus in about a month. Biopterin had to be applied at the end (in the form of the supplement BH4 which is very similar), as rabies virus apparently depletes it in the brain (BH4 is also a supplement used in autism treatment sometimes)<BR/><BR/> I wonder - what if the HPV virus(es) can be the same as rabies occasionally? Rabies causes no serious symptoms right after you get a bit, until it finds it's way to a nerve that is - at which point it starts progressing to the spinal cord, causing damage as it goes.<BR/><BR/> Since HPV causes can cause genital warts which come and go, I wonder if it's similar to HHV - that it goes dorment and occasionally reactivates and causes problems. HHV likes to hide in nerve roots, or near them (thus causing shingles) I don't know if there has ever been a case where the HPV virus would cause paralysis, but people usually are not injected directly with 4 of them at once, as with Guardasil.<BR/><BR/> Now, if this is true, recovery depends on whether the immune system can clear the virus, and whether the nerve damage can repair itself. At least some nerves can regrow, but only very slowly - t least naturally, as with the vagus nerve healing is cases of long-uncontrolled diabetes after blood sugar is normalized. Whether nerve recovery could be increased using BDNF (brain derived neurotriphic factor) or some other nerve-growth/differentiation agent I have no idea - or whether it would be safe.<BR/><BR/> The other question is *where* the nerves are damaged. If they are damaged all the way to the spinal cord, it is a much worse situation than if some "connection" of the peripheral nerves and the cord has been broken. The fact that Jenny's paralysis was so sudden *might* indicate the latter, as nerve death that extended from the cord all the way along the peripheral nerves I'd think might be much more scattered what it would impair in terms of movement.<BR/><BR/> Another possibility is that the nerves themselves are intact, but that transmission through them is simply impaired. Biopterin deficiency has been associated with autism and dystonia (1). I don't know if it has ever been associated with paralysis, and that idea is a long-shot at best. Nor do I know if Biopterin is disrupted by HPV, although it may be disrupted by other things in the immune response to it (in the case of rabies, I don't know if it depletes the chemical directly, or if some response of the body to the virus does).<BR/><BR/> Other things can interfere with nerve conduction, although whether they can shut down condition all together I don't know.<BR/><BR/> I assume tests have been done to assess whether the paralysis is due to nerve dysfunction or dysfunction in the motor cortex of the brain? Have tests to see if de-mylineation is going on been done (which would make it a very fast-moving form of multiple sclerosis I guess)? I know that low-dose naltrexone has been shown to be useful in essentially halting MS in some cases. In demylineation is at fault, autoimmunity might be a cause. Whether that points to any way to reverse it, I don't know - although the relapsing-remitting pattern of MS (autoimmunity against myelin basic protein I think) suggests that the brain can remylineate nerve axons if the autoimmunity is shut down.<BR/><BR/> My prayers are with you.<BR/><BR/>1. Dystonia with marked diurnal variation associated with biopterin deficiency - Fink et al. 38 (5): 707 - NeurologyJimhttps://www.blogger.com/profile/10951570753949444116noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-72750337441769552812008-06-24T07:50:00.000-07:002008-06-24T07:50:00.000-07:00I am so sorry to hear about what you are all going...I am so sorry to hear about what you are all going through. I was diagnosed with CIDP over 5 years ago when I was 19 but would not count as a comparable. I posted a link to your blog on the GBS-CIDP Foundation International forum asking people to see if they could be a "comparable". My hope is that someone will be able to relate and help.<BR/><BR/>I'm sorry again for what you are going through and wish you all the best; especially Jenny. She is a beautiful girl and I hope that the doctors and help her soon!The Espersen Familyhttps://www.blogger.com/profile/01604978755223790154noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-64921842894927079532008-06-19T14:41:00.000-07:002008-06-19T14:41:00.000-07:00Dear Jenny, My granddaughter Amber is 14...Dear Jenny,<BR/> <BR/>My granddaughter Amber is 14 years old and had 2 of the 3 shots in the series of Gardasil Vaccine.<BR/>Amber became ill on August 1, 2007. Within 10 hours she went from perfectly normal to completely paralyzed from the waist down. After numerous tests, Dr. Robert Baumann and the neurology staff at the UK Children’s Hospital in Lexington, KY diagnosed her condition as transverse myelitis (TM). Transverse myelitis is a rare neurological disorder of the spine caused by inflammation across both sides of one segment of the spinal cord. TM occurs in both adults and children, and typically begins with a sudden onset of lower back pain, muscle weakness in the legs, spasms in the toes and feet progressing to more severe symptoms which include paralysis, urinary retention and loss of bowel control. She was hospitalized for 21 days and her treatments included steroids, plasmapheresis, IV-IgG and later Rituxan. Please visit Amber's website for more information on her at www.hope4amber.com<BR/><BR/>Thank you and God Bless,<BR/>Betty Fowler<BR/>Email; bjfowl@aol.combjfowlhttps://www.blogger.com/profile/01572666674331574829noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-66807275397200414332008-06-18T06:43:00.000-07:002008-06-18T06:43:00.000-07:00Hi there,I don't have the first clue what this cou...Hi there,<BR/><BR/>I don't have the first clue what this could be but I'd just like to say I'm thinking of Jenny. When I was a little kid, my grandad was paralysed from his head down (from an accident, though, not something like this) so, to a certain degree, I know how it is. I hope a viable method of treatment is found.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-58507764185239024172008-06-16T21:04:00.000-07:002008-06-16T21:04:00.000-07:00Jenny and Family,I do not have a suggestion, but I...Jenny and Family,<BR/><BR/>I do not have a suggestion, but I was moved by your story and wanted to offer you my prayers as well as some hope. <BR/><BR/>I understand, a little bit, of what you are going through. This January, I came down with some sort of debilitating condition that put me in severe pain and eventually took away my ability to walk. I, too, couldn't find a doctor who could diagnose me with anything other than a mechanical problem that could be corrected by a chiropractor. Finally, after seeing many specialists, an infectious disease doctor put me in the hospital and conducted every possible test and exam available on me, sometimes multiple times. He brought in other specialists, one of whom finally came to the conclusion that it is a form of arthritis. It has taken almost 6 months of doctors' visits, drug treatments and hospital visits to finally get me to the point where I can finally walk again without a walker.<BR/><BR/>I understand how extremely frustrating and sometimes discouraging it can be dealing with something tramatic happening to your body...especially when you have no answers. My deepest sympathies go out to you and your family. I just want to let you know that it is worth it to keep fighting. Keep the Lord close to your heart. <BR/><BR/>I will forward this link to a group of women that have been praying for me. They gave me hope with their prayers and the information about others that were dealing with unknown diseases - maybe they know someone who can help. <BR/><BR/>I will keep you in my prayers as well.doubtitin2000https://www.blogger.com/profile/09648490427196450015noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-6806025867584096612008-06-16T11:12:00.000-07:002008-06-16T11:12:00.000-07:00Stay brave and strong, Jenny. Our prayers are with...Stay brave and strong, Jenny. Our prayers are with you. We are spreading the words and inquiring the possibilities. Hang in there!Unknownhttps://www.blogger.com/profile/03698599599370753913noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-56282015162631158222008-06-15T18:35:00.000-07:002008-06-15T18:35:00.000-07:00Ginger at Age of Autism has a report of 2 more HPV...Ginger at Age of Autism has a report of 2 more HPV deaths in Europe. Maybe the relevant agency there EMEA, European Medicines Agency, would have more info if a doctor were to inquire.A Higginshttps://www.blogger.com/profile/09136735557424485770noreply@blogger.comtag:blogger.com,1999:blog-810761027729657969.post-84601298481125349292008-06-15T11:10:00.000-07:002008-06-15T11:10:00.000-07:00This might sound out there but I would cleanse the...This might sound out there but I would cleanse the whole body inside out. Get rid of all toxins in the body with cleanses; including colonics, metal, liver/gallbladder , candida, & full body/lymphatic cleanse. Read the book Natural Cures What They Dont Want You to Know About by Kevin Trudeau. Go to his web site www.naturalcures.com. I found him when I was pregnant and from him I have learned quite a bit. I am not saying it will cure you overnight but it might be a start. I wish you well and I hope your story travels the globe and prevents other girls from receiving the vaccine. I will be thinking of you, it will be hard not to....Sincerely, JenniferLoahttps://www.blogger.com/profile/09746126142816397671noreply@blogger.com