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Jenny was a 15-year-old girl who lost her battle to a rapidly degenerative neurological disease on March 15, 2009. To save other Jennies, please sign the VAERS petition at http://www.thepetitionsite.com/1/oneclickonelife
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About the Photos
DISCLAIMER: This website has NOT authorized all links to it from other websites that reference it. Photographs appearing on this site may NOT be reposted or published without express written consent of Jenny's family.
Am I a Comparable?
To aid in finding a cure for the disease that took Jenny's life, we are still collecting information on any “strong comparables” to Jenny’s case, where a comparable is defined as someone:
(1) who has experienced rapidly progressive weakening and loss of the use of his/her limbs,
(2) for whom the onset of the condition began before adulthood, and
(3) for whom treatments such as immunoglobulin (IVIG), plasmapheresis, steroids and immunosuppressants such as Cytoxan have failed to halt the progression of disease. The comparable would be even stronger if
(4) the individual were female rather than male. And, it would certainly be of interest if
(5) the potential comparable had received the Gardasil vaccine (or perhaps some other vaccine with key similarities, such as an aluminum adjuvant) prior to the onset of symptoms.
(6) It would also be of interest if the patient had both muscle weakness and pityriasis lichenoides (a rare skin condition thought to be auto-immune in nature).
But, we would like to hear about anyone diagnosed with juvenile-onset ALS or motor neuron disease, especially females with rapidly progressive weakening.
It is not necessary for a potential comparable to have each and every one of these attributes. But, when communicating about a possible comparable patient, please let us know which attributes that patient has in common with Jenny's case and any other potentially relevant information about the patient’s case history, family medical history, etc. Contact information for a physician familiar with the patient’s case would be especially helpful.
(1) who has experienced rapidly progressive weakening and loss of the use of his/her limbs,
(2) for whom the onset of the condition began before adulthood, and
(3) for whom treatments such as immunoglobulin (IVIG), plasmapheresis, steroids and immunosuppressants such as Cytoxan have failed to halt the progression of disease. The comparable would be even stronger if
(4) the individual were female rather than male. And, it would certainly be of interest if
(5) the potential comparable had received the Gardasil vaccine (or perhaps some other vaccine with key similarities, such as an aluminum adjuvant) prior to the onset of symptoms.
(6) It would also be of interest if the patient had both muscle weakness and pityriasis lichenoides (a rare skin condition thought to be auto-immune in nature).
But, we would like to hear about anyone diagnosed with juvenile-onset ALS or motor neuron disease, especially females with rapidly progressive weakening.
It is not necessary for a potential comparable to have each and every one of these attributes. But, when communicating about a possible comparable patient, please let us know which attributes that patient has in common with Jenny's case and any other potentially relevant information about the patient’s case history, family medical history, etc. Contact information for a physician familiar with the patient’s case would be especially helpful.
61 comments:
I am so very sorry about your loss. My thoughts are with you and your family during this difficult time. May Jenny rest in peace.
My thoughts and prayers go out to you and your family. Nothing I say can make this better, but know that many thought go out to you.
so, so sorry. speechless. our hearts are with you and jenny will always be in ours. jill
Jenny's passing is a gravely saddening loss of great magnitude. But just in the joy you brought to your dad, I can clearly tell that your mere 15 years brought a joy to this earth of a much greater magnitude.
Jenny's passing is a gravely saddening loss of great magnitude. But just in the joy you brought to your dad, I can clearly tell that your mere 15 years brought a joy to this earth of a much greater magnitude.
Sincerely,
mahendra
What devastating news. Please know that, though Jenny's life was too short, she affected many people--even those far away and those she never knew. We will remember her.
I am so sorry and saddened to hear that Jenny has passed away. It's a blessing that she was surrounded by her family, feeling your love for her, at the end. Please know that you are in my thoughts and so many others'.
My heart goes out to you all. Words can do so little at a time like this--just know we care, and are thinking of you during this difficult time.
Linda and Bill
you are in my prayers - i pray that you are able to grieve and, ultimately, find peace.
I'm so sorry to hear that. We all will continue our heartfelt support in this time of mourning.
I am so sorry for your loss. I had decided not to get my girls the Gardisil shots and when I read about Jenny, it just confirmed my reasons not to get it. Not enough info has been figured out with this medication. I hope you know that Jenny didn't die in vain and I hope your family keeps fighting for her and discover what caused this.
Dear Barbara and Phil,
My prayers are with you during this difficult time. I'm so sorry for your devastating loss. I wish you all the best in this time of great grief.
-Joanne Miller (OSU social psych; I babysat Jenny a number of times while I was in grad school)
What can a person say to the family that lost a child, not much. Even though I am so far away I will grieve with you because Jenny was close to my heart. I, in my own way, share your loss.
Jenny touched the lives of so many people and changed them forever. I am included in that group.
I believe Jenny is now an angel who will watch over us forever.
You will be in my prayers.
Cynthia Janak
I am so sorry to hear of Jenny's passing. My thoughts are with her family.
What a tragedy for not only her family but for all of those who have known or heard of Jenny.
Jodi Speakman
I am so sorry to hear of Jenny's passing. My prayers go out to the family.
My deepest sympathy on the loss of your beloved Jenny. Your family is in my prayers.
I am so sorry. So sorry.
I'm so sorry for Jenny's passing. Your family will continue to be in my thoughts and prayers.
For those most affected by grief, nasal Oxytocin can help...
Go to www.GriefSOS.com
My condolences.
We are so sorry for your loss. This is a great loss to all.
Our hearts are broken for your family. Please know that you are in our thoughts and prayers.
The Fuller Family
My prayers are going out to you and your family Professor Tetlock. So sorry for your loss.
Best,
Ian
So young! Gone too soon!
Our hearts go out to the family.
Rest in peace Jenny.
This amazing Jenny and her family have fought harder to find out what illness that had taken over her body more than anyone possibly could have. My praise and admiration to them all along for their hard work. I send to them my deepest sympathy in having lost this beautiful child of only 15 years. I cannot even imagine their pain.
Thanks must also go to the awareness this brave family made of the possible risks and outcome of girls receiving the Gardisil vaccine. Before I knew about Jenny I had my teenage daughter start the series. She never got to fininsh it and now I have no intention to have her restart the series all because I feel very strongly through Jenny's experience and the research her family has brought forth to the public eye, that this vaccine is anything but routine, predictable or safe. What a service Jenny's family has done to produce this awareness. What a sin this could possibly be the reason they have had to lose their child.
Professor Tetlock, I am so sorry to hear about Jenny's passing. You, your family and Jenny's journeys have left a mark.
peace,
tracy
I can't even begin to imagine the devastation. Just know that I hugged my 14 year old daughter a little harder today in memory of Jenny and her brave, strong family. I would love to know where we can donate in Jenny's memory.
I'm so very sorry to hear of your loss. I had been following Jenny's story for months and had been praying for her. My thoughts and prayers are with you and your family.
Rest in peace Jenny.
The Ferrara Family
All my love to you and your family, Phil. You and Jenny are in my thoughts and heart.
Cort
I am so very sorry.
Kim
Age of Autism
Phil and Barb --
I am so so sorry for your loss. The other day I was moving things out of the study of my condo and was thinking of how delightful Jenny was when she played in it during a party we had back when you all visited Charlottesville so very long ago.
Jenny's blog has been informative and inspiring. I think you guys don't realize how many lives you have touched. You are in all of our thoughts.
Bobbie Spellman
I am so very sorry. Jenny touched many hearts, including mine, during her illness, so I can't begin to imagine what you all are going through.
Godspeed,Jenny
Kristin
We(neighbors)are very sorry about your loss and may our prayers be with you during this very difficult time. Having known Jenny as a great spirit and always smiling, we will remember her just like that. May she rest in peace.
I'm very sorry.
I am so so very sorry for your loss. My thoughts and prayers are with you...
May Jenny rest in peace. May you all find some peace...
Jenny was a very brave young woman, and she was so very fortunate to have such a loving, devoted family.
I am so sorry for your incredible and inconceivable loss.
I am so sorry for your unimaginable loss, and sorry that Jenny's cure was not found soon enough. Please know that in making her struggle public you, and she, have done a great service to others. May she rain down pennies from heaven to light your path on the days when her absence is felt most acutely.
Dear Tetlock Family,
Our sincere condolences. Our thoughts will be with you in these really hard times.
We are two concerned mothers, battling against the “vaccination” of 12 – 16 year old girls with Cervarix (HPV vaccinations). We struggle against the Pharmaceutical industry and the governmental decisions in The Netherlands.
Please will you keep us informed about the progress in your search for the truth.
Thank you very much.
We wish you strength during these difficult times.
Anneke Bleeker, The Netherlands, email: Anneke@verontrustemoeders.nl
Irene Schoots, Switzerland, email: irene@verontrustemoeders.nl
I cannot say how sorry I am that you lost your precious Jenny.
We are so sorry to hear of Jenny's passing. Our prayers are with you all during this difficult time. May God give you peace and hope during this difficult time.
The Fiste FAmily
I'm so sorry for your loss. My thoughts and prayers go out to you and your family. I wish you all the best in this great grief. May God give you peace and hope during this difficult time.
We are saddened beyond words by Jenny's loss, but take solace in the fact she was surrounded by so much love and devotion, and also in the knowledge she will find peace and eternal happiness in the Lord's gentle and loving hands. Jenny, Phil & Barb, her extended family and all her many friends will remain in our prayers. We (Phil and Barb's former students) will pitch in and work together to create a suitable tribute to Jenny, such as an academic scholarship. Chuck & Roberta
Phil, so sorry about your loss and the ordeal you have been through. I wish you strength and peace in time. Best, Vaughn Shannon
Dear Tetlock family,
We have followed Jenny's journey from Paul's first phone call to our son-in-law Nate to tell of her illness to various blog updates. Thanks you for letting us get to know Jenny from a distance through the blog and thank you for your work in making many people aware of the possible connections to Gardisil. She seemed like a brave and special young woman. Our hearts hurt with you. Janis and Steve Ban
My condolences and best wishes to all. I am so sorry.
Phil, words cannot express the sorrow in my heart.
I am very sorry for your loss and thank you for talking about your experiences and keeping everyone informed.
We are so sorry for your loss. Please know your family, and Jenny, are in our hearts and prayers.
The Cantkier Family
There are no words that can console a family who has to bury a child, it goes against the grain of nature.
I had been informed about Gardisil through a dear friend of mine who is anti-vaccine and took her advice. And if I had to do it all over again, we would not have vaccinated our children what-so-ever. I am still hanging on the side that vaccines caused my sons autism.
Please know the Jalil family has you in our thoughts.
I am praying for your family...and praying that everyone here's your message so that no other girls suffer the way Jenny did! May God be with you and bring you peace.
I'd never considered how powerful a loss it would be when my 15 year old daughter would lose a childhood classmate. Jenny was always so sweet to Roschelle when alot of other girls weren't. Jenny was a lark, we will remember her forever
I am so very sorry for your loss. My thoughts are with your family and with Jenny.
My tremendous sympathies for your loss of this beautiful young girl. I am sending her story to my young nieces and anyone else with a daughter of an age to receive the Gardasil shot. Thank you for your courage in sharing her story.
I am so sorry for your loss, I pray that you will recieve comfort in this time of heartbreak. My daughter too has been ill from the vaccine and I have taken comfort in the last year from your story and have felt less alone during this trying time, I can not express how much words fail me, and how unfair the situation is. We will continue the fight to prevent any more children's lives being stolen, and Jenny will be ever present and remebered.
Prof. Tetlock -
I'm so sorry to hear about Jenny's passing. My heart is breaking for you and your family. Love, Bethany
I am so sorry for your loss. Your family is in my thoughts and prayers.
Dear Barb and Phil,
I am so so sorry. Eva and I have so many fond memories of Jenny. I think of all the Children's Theatre's plays we went to when the girls sat on our laps instead of their seats. Or when we went bowling and Jenny tried to kick the ball down the lane rather than rolling it. She was a very special girl even when she was little with such a wry sense of humor and you are such great parents. All three of you are in our thoughts always.
Jan and Eva
To Jenny's parents and family,
There are no words to ease the pain, but the love you receive from people around you is such a great help. Just to be there to share. May all the good memories of your daughter be with you always. Those memories might be a help to grieve. Take time to grieve to find your way because your world is upside down. And even more than that.
To put your daughter to rest is the hardest thing to experience, I know it all because I have been there.
May I offer my condolences and sympathy to Jenny's parents, family and friends.
To all the people in the USA:
I would like to ask you to get on your feet and do something to stop this!!!! I live to far away (EUROPE) to do something but all I can do is to ask you to help this family. Get on the internet, get support groups, wake up the politicians, go to TV stations etc. etc.
One nation united can make things change!! What did Mr. Obama say: YES WE CAN. So I say: YES YOU CAN!!! Start NOW and say : YES WE CAN, WE CAN STOP THIS!!
Jenny’s family could do with your support, please help the parents to get to the bottom of this and find the truth. And put a stop to this vaccine till they have something better to offer. No child should be at risk!!! NEVER!!!
From the Netherlands,
Odilia.
o.schaijk@chello.nl
look on this page for this message:
March 17, 2009 5:57 PM
it's a message from Anneke.
In this message she wrote who she is and about the battle against this vaccin.
An update:
The vaccination rate in the Netherlands went down from 60% the first week to 35% - 47% at the moment, due to the battle Anneke and her friend Irene started only a few weeks ago.
They started to critize the vaccination campaign. On the internet, newspapers and TV stations they asked the parents to get more information first and to think twice before taking the vaccin.
Health Department RIVM was hoping to have 70% of the girls showing up but after one week only 35% -47%did.
Lots of parents are aware now that side effects are still unknown and it is only a few years on the market. That's why they didn't want their daughters to take the vaccin.
My deepest condolences to the entire Tetlock family. I am so sorry for your loss.
I am so sorry to hear this news. I'll be thinking of your family.
As a parent that has lost a child, I know that part of your heart will be broken forever and another part will always be filled with the joy that your child gave you. I followed Jenny's story because I am writing a book about the alarming amount of toxins that our children are exposed to these days. The Pharmaceutical companies not only want to vaccinate them, they want them medicated from the cradle to the grave with dangerous drugs with side effects. My research has found many stories like Jenny's. It is my belief that this vaccine will have far greater consequences in the future when it damages the fertility of these vaccinated girls who may not presently have side effects. I believe that Jenny raised the alarm that all was not well and may have saved other young lives. It seems that the best and brightest young women are having the most adverse reactions. My thoughts are with you in your time of sorrow. You may not ever be able to prove with absolute certainty what caused Jenny's illness, but you owe it to Jenny to explore all possibilities leading to the truth.
As a parent that has lost a child, I know that part of your heart will be broken forever and another part will always be filled with the joy that your child gave you. I followed Jenny's story because I am writing a book about the alarming amount of toxins that our children are exposed to these days. The Pharmaceutical companies not only want to vaccinate them, they want them medicated from the cradle to the grave with dangerous drugs with side effects. My research has found many stories like Jenny's. It is my belief that this vaccine will have far greater consequences in the future when it damages the fertility of these vaccinated girls who may not presently have side effects. I believe that Jenny raised the alarm that all was not well and may have saved other young lives. It seems that the best and brightest young women are having the most adverse reactions. My thoughts are with you in your time of sorrow. You may not ever be able to prove with absolute certainty what caused Jenny's illness, but you owe it to Jenny to explore all possibilities leading to the truth.
For Barb and Phil, our hearts go out to you in hearing about your terrible loss. Melinda and Jenny were friends at Kensington Hilltop, and we've only just learned about your tragedy. Please accept our heartfelt condolences during this incredibly difficult time. We'd like to bring you a picture of the girls together, when they were still little.
Please know that you're in our thoughts -
Julie (and Melinda)
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